Tomorrow

Tomorrow

Audioholic Ninja
Zumbo,

The hopes and prayers of our family is headed your way and especially for Cayla.

RJ
 
STRONGBADF1

STRONGBADF1

Audioholic Spartan
Zumbo,

Give your wife and daughter kisses and let them know your family has a boat load of positive moral support from a worldwide group of strangers.:)

Take care and give us an update when you find the time.

SBF1
 
Z

zumbo

Audioholic Spartan
We have spent most of the day at the hospital. She has been taken off the ventilator, which had tubes down her throat. She is now under an Oxydome. It is just a dome over her head that provides good moist oxygen. She has had a brain exam, and it doesn't seem to be good news. Several parts of her brain are contributing to the seizures, not just in the back of the head where the largest injury is. Due to the seizures, there are new problems with the liver and kidneys. This is all way over my head, and hard to explain. It does help tremendously to sit here and type it, rather than to speak it. I also knew I would get a tremendous amount of support from all of you. THANK YOU ALL for that.:)
 
stratman

stratman

Audioholic Ninja
Zumbo,

My prayers go out to your little girl, your wife and you, have faith my friend and don't stop praying, with God all things are possible.
 
Z

zumbo

Audioholic Spartan
Update

Cayla was given proteins and lipids as a source of nutrition over night. Apparently there were good results from this, as they are now ready to give breast milk a try. The breast milk is coming in real good today for my wife, and it looks like she will be able to provide a good supply for the hospital. WE will be back later tonight with another update.:)

There have been no seizures through the night.:D
 
mazersteven

mazersteven

Audioholic Warlord
There have been no seizures through the night.:D
Zumbo,

That is really wonderful news. I will continue to have your daughter in my thoughts for a full recovery.

I hope her little head is OK.
 
M

moreira85

Audioholic Chief
zumbo, first off thanks for the update, i cant imagine what you are going through but we will keep her in our prayers. Keep us updated wth good news. my wife and I are 5 months along in our pregnancy.
 
crashkelly

crashkelly

Full Audioholic
Zumbo,

I wish your family all the best and hope during a very difficult time. Kids, including babies, are resiliant and I am very sure your daughter will come through all of this with her little head held up high.

You, and your family, are in all of our thoughts

Michael
 
Halon451

Halon451

Audioholic Samurai
Likewise Zumbo, you and your family are in my thoughts as well. This is an extremely difficult situation, and this was a heartbreaking post to read, but kids are indeed very resilient creatures.

I wish the upmost best for Cayla, and hope that she makes a speedy recovery.
 
Z

zumbo

Audioholic Spartan
The latest.

Got to the NICU, checked-in, and went back to see my daughter. What I saw was breathtaking. A nurse was bottle feeding our baby.:D She had been taken off the oxydome(helps with breathing), and had also been taken off the Phenobarbital, and Dilantin(helps with seizures). The reason she was taken off the drugs is because her drug level was too high. The good news is, she has been without the drugs and oxygen for about thirty hours. There have been no more seizures, and no more apnea. We spent most of our day there. We got to hold our daughter, change our daughters diaper, and feed her a bottle on the next feeding. It was a great day.

This doesn't mean wee are out-of-the-woods yet. She still has a high level of the Phenobarbital in her system, so she may in fact have to get back on it by morning. We certainly hope not. So far, so good. If she does well with the feedings, she will get rid of the IV(lipids and proteins) as well.;) This was just a great day. I have cried as much about the good news, as I have about the bad.:)
 
mazersteven

mazersteven

Audioholic Warlord
This was just a great day. I have cried as much about the good news, as I have about the bad.:)
Excellent news Zumbo. Hopefully she will continue to improve. Stay positive. And remember it's OK to cry. :D
 
Tomorrow

Tomorrow

Audioholic Ninja
Got to the NICU, checked-in, and went back to see my daughter. What I saw was breathtaking. A nurse was bottle feeding our baby.:D She had been taken off the oxydome(helps with breathing), and had also been taken off the Phenobarbital, and Dilantin(helps with seizures). The reason she was taken off the drugs is because her drug level was too high. The good news is, she has been without the drugs and oxygen for about thirty hours. There have been no more seizures, and no more apnea. We spent most of our day there. We got to hold our daughter, change our daughters diaper, and feed her a bottle on the next feeding. It was a great day.

This doesn't mean wee are out-of-the-woods yet. She still has a high level of the Phenobarbital in her system, so she may in fact have to get back on it by morning. We certainly hope not. So far, so good. If she does well with the feedings, she will get rid of the IV(lipids and proteins) as well.;) This was just a great day. I have cried as much about the good news, as I have about the bad.:)
Z...

We're just so very happy for you and Cayla. Keep up the good progress, all of you.
 
Tarub

Tarub

Senior Audioholic
Thoughts and prayers for your family from here too.

Few years from now she will tell you that she can smell HIM. The smell of rain.

The Smell of Rain

A cold March wind danced around the dead of night in Dallas as the Doctor walked into the small hospital room of Diana Blessing. Still groggy from surgery, her husband David held her hand as they braced themselves for the latest news. That afternoon of March 10,1991, complications had forced Diana, only 24 weeks pregnant, to Danae Lu Blessing.

At 12 inches long and weighing only one pound and nine ounces, they already knew she was perilously premature. Still, the doctor's soft words dropped like bombs. I don't think she's going to make it, he said, as kindly as he could. "There's only a 10 percent chance she will live through the night, and even then, if by some slim chance she does make it, her future could be a very cruel one." Numb with disbelief, David and Diana listened as the doctor described the devastating problems Danae would likely face if she survived. She would never walk, she would never talk, she would probably be blind, and she would certainly be prone to other catastrophic conditions from cerebral palsy to complete mental retardation, and on and on. "No! No!" was all Diana could say. She and David, with their 5-year-old son Dustin, had long dreamed of the day they would have a daughter to become a family of four. Now, within a matter of hours, that dream was slipping away.

Through the dark hours of morning as Danae held onto life by the thinnest thread, Diana slipped in and out of sleep, growing more and more determined that their tiny daughter would live, and live to be a healthy, happy young girl. But David, fully awake and listening to additional dire details of their daughter's chances of ever leaving the hospital alive, much less healthy, knew he must confront his wife with the inevitable. David walked in and said that we needed to talk about making funeral arrangements. Diana remembers, 'I felt so bad for him because he was doing everything, trying to include me in what was going on, but I just wouldn't listen, I couldn't listen. I said, "No, that is not going to happen, no way! I don't care what the doctors say; Danae is not going to die! One day she will be just fine, and she will be coming home with us!"

As if willed to live by Diana's determination, Danae clung to life hour after hour, with the help of every medical machine and marvel her miniature body could endure. But as those first days passed, a new agony set in for David and Diana. Because Danae's under-developed nervous system was essentially raw, the lightest kiss or caress only intensified her discomfort, so they couldn't even cradle their tiny baby girl against their chests to offer the strength of their love. All they could do, as Danae struggled alone beneath the ultraviolet light in the tangle of tubes and wires, was to pray that God would stay close to their precious little girl. There was never a moment when Danae suddenly grew stronger.

But as the weeks went by, she did slowly gain an ounce of weight here and an ounce of strength there. At last, when Danae turned two months old, her parents were able to hold her in their arms for the very first time. And two months later-though doctors continued to gently but grimly warn that her chances of surviving, much less living any kind of normal life, were next to zero. Danae went home from the hospital, just as her mother had predicted.

Today, five years later, Danae is a petite but feisty young girl with glittering gray eyes and an unquenchable zest for life. She shows no signs, what so ever, of any mental or physical impairment. Simply, she is everything a little girl can be and more-but that happy ending is far from the end of her story.

One blistering afternoon in the summer of 1996 near her home in Irving, Texas, Danae was sitting in her mother's lap in the bleachers of a local ballpark where her brother Dustin's baseball team was practicing. As always, Danae was chattering non-stop with her mother and several other adults sitting nearby when she suddenly fell silent. Hugging her arms across her chest, Danae asked, "Do you smell that?" Smelling the air and detecting the approach of a thunderstorm, Diana replied, "Yes, it smells like rain." Danae closed her eyes and again asked, "Do you smell that?" Once again, her mother replied, "Yes, I think we're about to get wet, it smells like rain. Still caught in the moment, Danae shook her head, patted her thin shoulders with her small hands and loudly announced, "No, it smells like Him. It smells like God when you lay your head on His chest." Tears blurred Diana's eyes as Danae then happily hopped down to play with the other children.

Before the rains came, her daughter's words confirmed what Diana and all the members of the extended Blessing family had known, at least in their hearts, all along. During those long days and nights of her first two months of her life, when her nerves were too sensitive for them to touch her, God was holding Danae on His chest and it is His loving scent that she remembers so well.

*******************
Snoops confirmed that this story was true!
 
billy p

billy p

Audioholic Ninja
Our baby was born Friday night. She was 8lb, 12oz. 21 inches long. My wife did very well, however there was a problem with the size of the baby. She was stuck in the birth canal for 3+ hours, and the doctor elected to do an episiotomy. The doctor also had to use a vacuum type tool to assist with the delivery. The baby suffered from a brain contusion in the back of the head where the rear plate of the skull pushed on the brain with excessive force. The plates of the human brain are not connected to each other, therefore they can move independently. This could not be seen since the crown is all that was in view. Due to this complication, the force of the vacuum pulling from the top of the head further applied force to the brain. The baby was in NICU at our hospital for an entire day, and has been transported to the NICU at the University where the top specialist in the state can further assist with the babies condition.

The baby is suffering from seizures due to the brain contusion, followed by apnea episodes (baby stops breathing) during the seizures. She has been connected to a ventilator which is breathing for her. The lungs are in perfect condition, but she needs the ventilator for the apnea during the seizures. She is being fed by an IV. What the doctors are doing is controlling the seizures while the brain injury heals. At this point, we don't know if there is any brain damaged. We should get a report on this today.

Any prayers would be much appreciated. The Audioholics community has become a big part of my life, and I felt I wanted to share this with all of you. Thank all of you.
All I can say been there and done that and my thoughts go out to you. Our little guy went into distress PPHN (presistent pulmonary hypertension of newborn) which was caused by meconium aspiration in labor and it almost killed him:(. At one point we counted as many as 12 lines running through his tiny body, which eventually lead to blood clots and infection. Over time the NICU @ our sick kids hosital did a wonderful job and those people are amazing. I just wish now they could do something about him again because he makes us nuts;).

Good luck in the full recovery of your baby.Billy p:)
 
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M

moreira85

Audioholic Chief
zumbo

that is great news zumbo, my wife and I have been praying for Cayla. Thats great that they had her out of the bubble dome. How are things going with cayla and how is her brain doing??
 
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